autism is not a mental illness

Tess' Aspie pride

My daughter, Tess, is so proud of being an Aspie. She came up with the idea (above) for a t-shirt and bumper sticker shortly after being diagnosed with Asperger’s this past June. That diagnosis explained so much to her. It gave her an identity besides “broken,” which is how she felt because that’s the feedback she got from others. It made her feel like she has superpowers, particularly since her hero, Einstein, is believed to have had Asperger’s. She fully embraced Aspie pride because we framed her Aspie-ness as a different way of thinking, which it is, not as a mental illness, which it is not.

Today I sent her to school in a world focused on a killer of children in Connecticut and awash in media reports linking his Asperger’s to his violence. But Autism isn’t a mental illness and the link to violence isn’t true. Does that matter, if that’s what everyone has heard? Does that matter if now Tess feels ashamed of being an Aspie? Does that matter if kids at school equate her with a killer? Today I had to explain to her that people are talking about the shooter having Asperger’s and that even if that is true, it does not explain what he did, and that it has absolutely nothing to do with her. It is hard enough to talk to a child about a mass killing at a school. It is even harder to talk to a child about the shooter being identified with her community and to assure her that doesn’t have anything to do with her.

Mental illness is something that both neurotypical people and people with Autism can have. But Autism isn’t a mental illness. And our propensity to look at violence and stereotype a whole group of people (whether people with Autism, people who are Muslim, any group–it seems–except white people who enjoy the privilege of their dominant culture) disturbs me.

I am displeased with the media for their demonization of Asperger’s in their frenzied writing about the killer. I am in pain at the very idea that Tess will take on this additional burden simply because we stereotype to fill up the vacuum of not knowing. People with Asperger’s don’t need this blow to their self-esteem.

I worry about Tess, not that she will grow up to be a mass murderer, thank you very much Media Frenzy, but that she will absorb the messages that society is telling her about herself and doubt her superpowers, her extraordinary way of being in the world; that she will wonder if she sees herself in violent people who might have Asperger’s. It is hard enough to feel friendless and alone and broken. It is hard enough to respond to sensory input in ways you can’t control. It is hard enough to be on a first name basis with a psychiatrist when you’re in the fourth grade. It is hard enough to be nine years old and have to tell your teacher you believe you have depression. It is hard enough.

About Patti Digh

Patti Digh is an author, speaker, and educator who builds learning communities and gets to the heart of difficult topics. Her work over the last three decades has focused on diversity, inclusion, social justice, and living and working mindfully. She has developed diversity strategies and educational programming for major nonprofit and corporate organizations and has been a featured speaker at many national and international conferences.

18 comments to " autism is not a mental illness "
  • Patti, thank you for sharing. It is a crying shame that in our frenzy to find answers, to point fingers, to apprehend phantom perpetrators, that we would cause injury to innocent bystanders. But that is precisely what is happening. We are rushing away from our grief because it is painful and unwieldy. I recently posted a poem about grief and a beloved family member posted below it, “Lauren, I love you but it is time to stop grieving and praying and time to act.” This was barely 24 hours after the tragedy. We have not grieved enough. We have not felt deeply enough into our loss. And if we act our of anger and fear in our rush to flee our grief, we are likely to create more damage. I see this happening. You have seen this happen in your own family. And I am very sorry for it. Holding you and Tess in my heart. You have lots of company there today.

  • Susie Bertie

    thank you thank you … for organizing these words, for shedding some light here and defining this truth. I saw the conflict & fear in my daughter’s face as we watched this unfold, and she is almost 22. And so, we construct an armor of knowledge, truth & love … thank you & Love .

  • Thank you for posting this- I hope too that no matter what “label” we apply to people- let us never forget that each is human and that they- in some ways are us….I am because we are. Ubuntu. The fact that we have so many people suffering right now is indicative of the fact that more love is needed and compassion must be practiced. We are all being called to act on a deeper level here. We have epic shhhhhh to accomplish on this front. Lets get busy:)

  • Sheila

    Tess is lucky to have a mom such as you rooting for her and helping her wisely negotiate this
    world with her unique and special gifts. The arms of my heart reach out to you
    and Tess and speak blessing to her life. She is greatly loved and I know that
    will make a huge, huge impact on how she works though all the hard challenges
    she faces. Thank you for sharing such a meaningful message.

    Sheila

  • Valerie

    “And our propensity to look at violence and stereotype a whole group of
    people (whether people with Autism, people who are Muslim, any group–it
    seems–except white people who enjoy the privilege of their dominant
    culture) disturbs me.” This. Yes.

  • So sorry to hear about this. So many want simple answers to complex questions and rush to judge because they think it makes them feel safer, but of course it is just the opposite. We must stand for our children and be the voice of compassionate reason in an often too cruel world.

  • Big hugs to Super-Tess, and to you for being her Super-Mom.

  • Hi Patti…what has happened is tragic. It made my heart hurt when I heard some of the attention shift to the fact that the shooter had Asperger’s or “some other mental disorder”. I thought of you and Tess and it made me sad that people who live with Asperger’s (or any part of the autism spectrum) might now be painted with the same brush as this deranged young man. Hugs to both of you.

  • Padma Ayyagari

    Autism is not separate from an autistic, just like neurotypical is not separate from me. Just because they (autistics) think and process things differently does not mean they are disabled and certainly NOT MENTALLY ILL. I love Wendy Lawson’s (an asperger who was given the label in her 40’s after going through her whole life being stigmatised and called names) definition. She calls these labels as a “Diffability” not “Disability”. Autistics have different abilities and those are certainly super powers than any neurotypical can muster.

  • Anonymous in a public forum

    I agree with you (as the parent of an Aspie and knowing that shapes my view) that ASDs are not what real people think of as mental illness, but as developmental delays. Those of use with an ASD family member think of them with words like “neuro-atypical,” My Kid, etc. My beef is that the box ‘mental illness’ is used by the state, by the social help systems, by the DSM, by any entity that controls insurance and social “helping” systems, and that label is what is used in the algorythm to get services for our loved ones. And NC is in the process of stripping help from these folks in the name of budget cutting; so fewer services, fewer supports, less help in the home and in the school and in the community means those who have needs, whether they’re developmental, physical, or psychosocial are going to be falling, falling, falling with out a safety net. This is not a good thing.

  • LJ

    Thank
    you for being a friend:

    Are
    children with Asperger’s typically violent?

    No, by nature
    they are not.

    I
    think there is another tragedy going on concerning the murder event at
    Sandy Hook.
    When I see the eyes and hear the tones of disapproval and
    loathing in the voice of interviewees talking about that Asperger kid that
    murdered, it is heartbreaking. The fact is that there have been
    millions of murder cases over the last century and 99.9% of the cases allegedly
    involved normal or other individuals with some other mental disorder. Asperger
    individuals may in fact be the least likely members of our society to be
    involved in an act of physical violence. There are many reasons why this is
    true. One reason for the nonviolent nature of Asperger individuals is the
    aspect of physical disability. It is very common for an Asperger individual to
    suffer from physical disabilities along with Asperger. Many with the disorder
    are uncoordinated and often have a difficult time with speech or even the most common
    physical movement. Physical precision is lacking. Another reason is
    the immediate need of physical involvement in an act of violence.
    Almost all Asperger and Autistic child do not like to be touched. Many Asperger children do not want to be
    involved in a germ filled situation. Asperger children usually go out of their
    way to avoid a messy situation. It is also very common for Asperger
    children and other children on the autistic spectrum to become frantic from
    loud sounds. One shot would have been enough for most on the autistic spectrum
    to avoid firing another shot. Of course, there are exceptions to every mental
    condition. However, the fact remains that a person on the autistic spectrum is the
    least likely individual in our society to commit an act of physical violence. The
    black eye that individuals on the autistic spectrum are getting is worrying.

    Please read this true story of a high functioning Asperger Individual.
    The story is one individual’s story. However, there are loads of facts about Asperger
    and Autism in the book that come from documented scientific sources. It took
    more than a year to collect the information.

    The story begins with a Christmas story.

    Click on the link: http://www.amazon.com/IN-THE-BELLY-Of-WHALE/dp/1479376264/ref=sr_1_cc_1?s=aps&ie=UTF8&qid=1353350208&sr=1-1-catcorr&keywords=In+the+Belly+Of+the+Whale+by+Jacob+Alexander

  • As a gay man I can relate to many things being said about me that are not remotely true. One must develop a thick skin, a strong spirit and you must know who you are as a person despite was is said by others. We (gays) have been demonized by this society in the past and we are all (those of us that survived it) the better and stronger for it. You can’t control the misconceptions of others, or suppress their ignorance.You must just simply live your life and those who want to see, do.

  • I had posted about my daughter who is a senior in H.S. with Autism. She had to come home today at lunch time due to the Ct. incident upsetting her and the way others may view her now because of all the things the news people are reporting about Aspergers. I was so glad that I had the opportunity to read what you have written. You are reaching many more people than myself and educating them about them about how AWESOME these children are!! We know because we are their parent’s but the world needs to know their potential as well. I shared with Baleigh that yes this young man had Aspergers but that does not mean this caused him to perform this act. Just as if all the shooters in the last year had brown eyes it is not the brown eyes that caused them to perform the act, or just because they were all men does not mean all men will be shooters. Thanks for what you do in making others knowledgeable.

  • I think part of the problem resides in that Autism (a learning disability) is in the DSM along with every known psychiatric illness. They don’t separate the two and it leads others to believe there is something wrong with us. I have Asperger’s, as well, and my daughter is autistic. It breaks my heart that they are demonizing us. Thankfully, I have shielded my daughter and myself from the news prior to this event, so we aren’t hearing much about it. It is much safer for us in the bubble we have created to separate ourselves from the hatefulness of the world. My husband is in Afghanistan right now and I just don’t have the strength to add this additional burden to our already heavy hearts. We’ve always told our daughter that autism is just a part of her. She is unique and special and we highlight her strengths and challenges as a part of who she is instead of hiding it from her and making her feel ashamed of herself. If I had been diagnosed as a child, my life would have been very different. It’s just a shame that instead of focusing on mental health, they seem to be pushing the story onto a learning disability. A person can have dyslexia without blowing up a building. A person can have ADHD without committing a hit and run. A person can have ASD or AS without killing people. In fact, most of us with AS and ASD have never committed a crime, let alone killed someone.

  • dawn white

    thanks for posting this. my daughter was a little upset that the media seemed to be making a connection between autism and violence. although we know of no one in our family with austism, my mom did have a mental illness. i think this is a great time to educate, as you have done with your posts. it’s also a time to think about mental illness and how we, as a society, need to be more sympathetic and understanding of those around us. life can be extremely challenging

  • mj

    Patti,I have tried for several days, without luck, to post, so I have now had a chance to read the entire post. I agree, it is wrong to attach a condition, sydrome, diagnosis, to justify, or attempt to explain, actions. I am sorry for your suffering, that the word “autism” has been attached to this tragedy, it is wrong. This attachment only adds more confusion, distraction and suffering, it is unnecessary.

    Below is my initial response to your post:

    I stopped at “any group—-except white….”

    that is so wrong, wrong, “except white”

    You work so hard to be part of the solution, not part of the problem….and
    here the ball has been dropped.

    Look to WW2 and the KKK, I am sure there are many others.

    White, is just one more group, with their problems of violence throughout
    history.

    And, white is a global minority based on population.

    This, this has saddened me, these errors contribute to the problem, not the
    solution.

    • MJ – I’m not sure you understood my point. Any dominant culture is not called into question en masse because of the errors of one or two people in that culture. That’s what dominant culture privilege is. That is all I meant. Thanks for your note.

  • […] Patti – who has a daughter who is an “Aspie”- wrote a great post about Aspergers in light of the current media frenzy. […]

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