finding your tribe

Tess with Corinne

This week Tess is at camp. Her first sleepaway camp. She is 10, has Asperger’s, and I knew a “regular” camp would never work for her. Most camps are designed for neurotypical kids, leaving Tess to be the “problem child” at the day camps she has attended.  But we found one near us that people come to from all over the country, one that only accepts kids with autism. This week is high-functioning week, or Asperger’s week.

I imagine many parents worry about sending their kids to camp at some level–I know we worried when Emma first went to camp in 2005 when she was 13.

This felt different. Maybe because Tess has such difficulty with social interactions. Or because she needs so much support to get through a day without having a “thunderstorm” about something you and I probably can’t see. Or because unpredictability throws her. Or just because.

Yet in the midst of all that trepidation, I was a staunch advocate for her to go. I knew in my heart that it was right for her at this moment in time, and John agreed to follow my lead on it, despite his misgivings. We rode there yesterday, John stealing looks  over at Tess as we went. She was excited and nervous and it was hard to tell which won out until we arrived and those emotions were suddenly overridden by embarrassment at having her parents there. The look in the photo is this: “You are too embarrassing for words. Really? You’re taking my picture?”

“She has difficulty with friendship and social stuff,” I whispered to her counselor, Corinne, just before we left Tess in her hands until Friday.

She laughed gently, and said, “All the kids here do. We all do.”

“Whatever she needs, we’ll take care of it,” Corinne said.

It is a beautiful camp. They know what they are doing. And for the first time in her life, Tess will truly be among her tribe. I so respect her willingness to try, to fling herself into something she has no idea about, to leap into a world of surprises that are so difficult for her.

 

 

 

 

About Patti Digh

Patti Digh is an author, speaker, and educator who builds learning communities and gets to the heart of difficult topics. Her work over the last three decades has focused on diversity, inclusion, social justice, and living and working mindfully. She has developed diversity strategies and educational programming for major nonprofit and corporate organizations and has been a featured speaker at many national and international conferences.

5 comments to " finding your tribe "
  • PEGGY ASHMAN

    This just makes me sob. With joy. The courage and the heart of both Tess and Mom and Dad. I can’t stand it. This is the best. It is my fondest hope that Tess feels in a lovely way the love and blessed energy of encouragement that surrounds her from every corner. I hope that the next “thunderstorm” will be mild and short-lived because of this energetic embrace.

  • aliferedesigned

    Bless you, Patti. You recognized what was best for your daughter, advocated for it, and celebrated it when it came about — even though as a mom, I’m sure you would rather have kept her close, under your protective eye and within reach of your loving arms. You did good! {{{{hugs}}}}

  • Cindy Reed

    My daughter is not on the spectrum but has her own set of challenges emotionally and socially from anxiety, depression, OCD, and more. She finished her first week of camp last week and it was the best experience for her, and me. (Respite for parents whose kids have special needs cannot be overvalued.) As she put it as I dropped her, “Well mom, I guess this is my first taste of freedom and fear.” For me too, sweetie. Go Tess, fly with your own wings, with your own tribe.

  • mpkemk@frontiernet.net

    Tess looks so brave; she’s a tough little girl, she’ll make this week count.

  • moranmonica

    What a wonderful post – thank you for sharing your daughters courage in taking such a big leap to try being in an environment that is so different for her, yet will surround her with people she will connect with!

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